Director Dominick Evans brings honest storytelling Spaces music video with the SMA community
Not every day to publish media that puts the disability community in the spotlight, but that the whole media would really be involved in those it concerns? It’s something completely different.
New release from James Ian Spaces does just that with the help of director Dominick Evans and other friends in the Spinal Muscular Atrophy community.
How Spaces Started
The SMA community wanted to show the world what it’s really like to live with the disease, in a clear but meaningful way. What originated in emails, phone calls, and video chats quickly became a unified idea and project.
Evans wanted to show first-hand how different and different everyone in the SMA community is. What better way than a music video to show how amazing people with disabilities can not only be, they are.
“We are creators and we are professionals.” says Evans. “We thought it would be a good way to show the world our talents while tackling the stigma we face as disabled with SMA.”
What is SMA?
According to Mda.org, Spinal Muscular Atrophy is a genetic disease that affects the central nervous system, peripheral nervous system, and voluntary muscle movement. The disease can manifest in different ways and to varying degrees.
Everyone with SMA and other injuries has different symptoms and different ways of managing their lives. Evans wanted to show this honestly and with authentic storytelling.
“It was important to me that we show a diverse group. People with all kinds SMA, from all different backgrounds and different life experiences. “
Evans does this by using pictures and sharing stories about real people living with SMA. In the video, Evans is able to show that people with disabilities can and want things that everyone else has, and whether it’s a career or a family, your disability doesn’t determine your value or entitlement to them.
“I’m a narrative filmmaker, so I feel like I tend to turn to the story element. This is the story of these people who are just living their lives. We want people to see that we are human. “
The future of people with disabilities
The words and message are clear when you see the video, and Evans hopes the video does more than just showcase talent; he hopes it will inspire others to do something about how society treats people with disabilities and how they are portrayed in the media.
“I want people to look at the world and think more about accessibility. People born healthy can also become disabled, and this can also be their story. Accessibility benefits us all, and if people start thinking about it, the world could be better. “
Evans has also failed in his mission. He hopes to be able to guide more in different forms and pave the way for others.
“Creating accessibility for others is important to me, and I want to bring others with me on this journey,” Evans says.
The video is partly sponsored by Genentech, and all information about SMA and the community can be found here.
To see where we’ve talked about positive representation in the disability community, check out our article on Doom Patrol here.